Publications And Other Resources
Every two years members of the Australian Cerebral Palsy Register Group work together to develop a new Australian Cerebral Palsy Register Report. These reports describe the prevalence and clinical profile of cerebral palsy in Australia using de-identified CP Register data from each of the state and territory CP registers. Links to these reports are provided below. Additionally, please see other recent publications produced by the ACPR Group.
- Australian Cerebral Palsy Register Report, Birth Years 1995-2016 (PDF), published in January 2023
- Australian Cerebral Palsy Register Bulletin, Birth Years 1995-2014 (PDF), published in October 2020
- Australian Cerebral Palsy Register Bulletin Summary Video, published in October 2020
- Report of the Australian Cerebral Palsy Register, Birth Years, 1995-2012 (PDF), published in November 2018
- Summary of the Australian Cerebral Palsy Register Report, Birth Years, 1995-2012 (PDF), published in November 2018
- Report of the Australian Cerebral Palsy Register, Birth Years 1993-2009 (PDF), published in September 2016
- Report of the Australian Cerebral Palsy Register, Birth Years 1993-2006 (PDF), published in April 2013
- Report of the Australian Cerebral Palsy Register, Birth Years 1993-2003 (PDF), published in April 2009.
2021
- Congenital anomalies in children with postneonatally acquired cerebral palsy: an international data linkage study
- Cerebral palsy in twins and higher multiple births: a Europe-Australia population-based study
2020
- Congenital anomalies in children with pre- or perinatally acquired cerebral palsy: an international data linkage study
- European and Australian Cerebral Palsy Surveillance Networks Working Together for Collaborative Research
- Linking data from a large clinical trial with the Australian Cerebral Palsy Register
2019
- Impact of social disadvantage on cerebral palsy severity
- Cerebral palsy trends in Australia (1995-2009): a population-based observational study
2018
- Cerebral Palsy in Australia, Submissions from the Australian Cerebral Palsy Register Group, January, 2016
- Comprehensive investigation of congenital anomalies in cerebral palsy: protocol for a European-Australian population-based data linkage study (The Comprehensive CA-CP Study)
2016
- Australia and the Australian Cerebral Palsy Register for the birth cohort 1993 to 2006
- A special supplement: findings from the Australian Cerebral Palsy Register, birth years 1993 to 2006
- An international survey of cerebral palsy registers and surveillance systems
- Interobserver reliability of the Australian Spasticity Assessment Scale (ASAS)
- Temporal trends in cerebral palsy by impairment severity and birth gestation
- Comparing risks of cerebral palsy in births between Australian Indigenous and non-Indigenous mothers
- Biological sex and the risk of cerebral palsy in Victoria, Australia
- Profile of associated impairments at age 5 years in Australia by cerebral palsy subtype and Gross Motor Function Classification System level for birth years 1996 to 2005
- Strabismus, a preventable barrier to social participation: a short report
- Change in residential remoteness during the first 5 years of life in an Australian cerebral palsy cohort
- The National Disability Insurance Scheme: a time for real change in Australia
- Congenital anomalies in cerebral palsy: where to from here?
- Cerebral palsy and perinatal mortality after pregnancy-induced hypertension across the gestational age spectrum: observations of a reconstructed total population cohort
2014
- What Constitutes Cerebral Palsy in the Twenty-First Century? Appendix S1 (XLSX – 28 KB)
- What constitutes cerebral palsy in the twenty-first century?
- Neuroimaging findings in a series of children with cerebral palsy and congenital cytomegalovirus infection
- Congenital cytomegalovirus is associated with severe forms of cerebral palsy and female sex in a retrospective population-based study.
- SCPE references/publications
- AACPDM preconference workshop 2014: Cerebral palsy registers and surveillance systems: why they are useful, how to start one and what to do next!
- Early, Accurate Diagnosis and Early Intervention in Cerebral Palsy; Advances in Diagnosis and Treatment (PDF), published in July 2017